Celebrate Our PWS Superheroes!

The Walking for Prader-Willi Syndrome events make up our biggest fundraiser of the year. The funds raised through this event help support the services and resources that are available to families in California that are living with PWS. With your help, we can ensure that PWCF is able to continue providing our entire catalog of services. Attending the Walking for PWS events are one way to help our cause, but fundraising will help us get closer to our goal.

What is Prader-Willi syndrome?

Prader-Willi syndrome (PWS) is a rare, complex genetic disorder that affects many systems in the body and is present from birth. PWS occurs in approximately 1 in 15,000 births. It is recognized as the most common genetic cause of life-threatening childhood obesity.

PWS is best known for hyperphagia, a chronic and intense drive to eat that does not turn off

Common features include:

• Low muscle tone (hypotonia) in infancy
• Feeding difficulties and poor growth early in life, followed later by excessive hunger and food-seeking behaviors
• Developmental delays and learning challenges
• Behavioral and emotional regulation difficulties
• Short stature, low muscle mass, and increased body fat
• Sleep abnormalities and temperature regulation issues

Support our family and others living in CA that rely on the support of the Prader-willi California Foundation.

We appreciate and thank you for any and all donations!

The Beers

We will be walking on May 16 - San Diego!

May 31 - Northern CA | Sacramento