JB & Susie Jones's Fundraiser
Help us create a Full Life Without Limits for people with Prader-Willi Syndrome
Join us and help make a difference for kids like Emily
Jennifer Shea
I donated in support of this campaign.
A supporter of JB & Susie Jones
"We love you Emily and the Jones family. Wish we could come and walk with you guys. "
-
Joseph Nelson
I donated in support of this campaign.
-
Ryan and Heather Mather
"Keep being amazing, Jones’ family!💕"
$25
A supporter of JB & Susie Jones
I donated in support of this campaign.
-
Caleb Jones
"Love you always Emily!"
$50
-
JB & Susie Jones
"We love you Emily! You're so brave, we are proud of you! Love - Mom and Dad"
$200
Friends and family - if you are in the Bay Area on May 24th, we'd love to have you join us for the annual Prader-Willi California Foundation (PWCF) fundraiser in Richmond. We're walking for our youngest daughter, Emily. As some of you may know, she has Prader-Willi Syndrome, and she and our family have benefitted from PWCF's efforts to raise awareness, promote research, and provide support for this rare condition. If you'd like to donate to a worthy cause, you can do so here on our fundraising page. Our heartfelt thanks to all of you who love and support Emily!
- Susie, J.B., Allie, Camryn & Isaac, Seth, Rachel, Caleb, and Emily Jones
---
Just a small donation will go a long way to helping us meet our goal for Prader-Willi California Foundation. Your gift is sincerely appreciated and will help support PWCF’s critical programs that improve the lives of individuals with Prader-Willi syndrome and their families throughout the State of California.
Donations received will help us:
- Support all newly diagnosed families in California
- Fund PWS Multidisciplinary Medical Clinics
- Maintain a 24-hour PWS Medical Crisis line
- Provide the only medically specialized camp in California that exclusively serves people with PWS
- Produce educational articles, brochures, webinars, and a quarterly newsletter
- Provide advocacy and support services to families and care providers
- Educate and support teachers, physicians and allied health professionals
- And so much more!