Our PWS Community Needs You

Join us in supporting real change. Let’s support good in the world and make a difference. Help us raise money for PRADER-WILLI CALIFORNIA FOUNDATION.

Ryan is 21 years old now, and for all of those years, Prader-Willi California has been there for us, supporting us with knowledge to provide the best care, providing advocacy for appropriate services, and connecting us with other families to give us a sense of community. All of these things are invaluable when dealing with a rare disorder. That is why we will once again be participating in the 5K this October for TeamPWCF. Your support is valued not just to us personally, but to the hundreds of families right here in CA that PWCF serves.

Thanks to your support, PWCF has been serving individuals living with Prader-Willi Syndrome, their families, caretakers, and providers with information, support, and advocacy since 1979 and with your continued support we can continue to do so for many years to come.

• What do parents do when they have a child with Prader-Willi syndrome, a disorder few people have ever heard of?
• What do they do when the doctor says their newborn doesn't need growth hormone yet, that they should "wait and see", when they know sooner is better?
• What does a parent do when the hospital won't listen to them because their child isn't presenting as seriously ill, but they know something isn't right?
• What does a parent do when their child's teacher keeps using food in the classroom?
• What does a parent do when Regional Center says their child has graduated from the early intervention program and eligibility is being terminated?
• What does a parent do when they need to apply for IHSS or SSI?

The answer to all these questions (and more) is that they call Prader-Willi California Foundation. PWCF helps advocate for appropriate services and support in all of these instances. This is just part of the work we do to support families who have a loved one with Prader-Willi syndrome. Your support allows us to continue this invaluable work.

PWCF is the only organization in California exclusively serving the PWS community.

Starting a fundraiser is easy to do, and it's fun. You'll be surprised at how much you can raise, just by asking people to support you. We'll even give you all the tools you'll need to make a difference. With your help we can continue to work toward our vision of A Full Life Without Limits.