Maddy Fluhr-Resendes's Fundraiser
We can provide resources and services for families living with PWS
Join me and help make a difference, please give today.
Jeanine Von Essen
I donated in support of this campaign.
$50
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Jeanine Von Essen
I donated in support of this campaign.
$50
A supporter of Emma Fluhr-Resendes
I donated in support of this campaign.
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James Litchfield
I donated in support of this campaign.
$100
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Jacqueline Smalley
"Go Emma!"
$300
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Steven Albelda and Suzanne Fluhr
"With love from your Philly Phamily. Aunt Suzanne, Uncle Steve, and dog cousin Gizmo"
$500
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Kate Connors
"Go, you hikers!"
$50
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Jeanine Von Essen
"Wishing you a great walk, Emma!"
$50
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Randy Albelda
"Go Team Emma!"
$100
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Jeffrey Breslow
"Maddy, Your request reminds me not only of your important cause, but how much you gave to me during our years working together at GK Mgt. Co. Jeff"
$150
A supporter of Emma Fluhr-Resendes
I donated in support of this campaign.
$100
A supporter of Emma Fluhr-Resendes
"Go, Em!"
$50
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Maddy Fluhr-Resendes
"Congrats, Emma, on your perseverance and caring nature!! You are kind and determined and we love you so much!! "
$250
Greetings Family & Friends,
On May 24, 2025 we are celebrating 25 years of walking to raise money to support PWCF and to raise awareness and understanding of what Prader-Willi Syndrome is all about. Emma is now 26 and Eddie and Maddy are 26ish+ (if one is dyslexic!) and can say with great gratitude that our little family is "still standing", growing & learning more about this sometimes baffling and frustrating syndrome with each passing year.
We continue to rely on PWCF to help show us the way! Whether it's a phone call to get a question answered, getting Emma ready for Prader-Willi Camp, or a webinar that highlights a drug recently approved by the FDA for people with PWS that can help de-intensify hyperphagia (the food drive) in individuals with PWS, PWCF is always there to keep us in the loop and to provide support. And this is the time of year we especially remember to support the organization back!!
If you are able to make a donation of any amount to help us reach our goal of raising $1500.00 this year to support PWCF we (and PWCF!) will be most appreciative.
We hope you are all doing well and handling life's ineveitable ups and downs with as much joy & equanimity as you can muster! We know it ain't always easy!
Lots of love,
Maddy, Eddie & Emma
Just a small donation will go a long way to helping me meet my goal for PRADER-WILLI CALIFORNIA FOUNDATION