
Emma Fluhr-Resendes's Fundraiser
Please Support Individuals & Families Living with Prader-Willi
Your support can make a world of difference.
We are no longer accepting donations on this campaign, but there are other ways for you to support us today!
Thanks to the support Emma and our family have received Emma has achieved what we all hope for - a life she loves! Making that possible, takes a tremendous amount of support to ongoingly manage the challenges presented by Prader-Willi Syndrome. PWCF has been one of our main cornerstones of support over many years. She goes to a food-safe camp each summer supported by PWCF. She continues to sing in The New Hope Band which is comprised of talented adults with special needs (Emma is feelin' it in the banner photo at the band's 2023 Sock Hop themed annual concert!), she attends College of Adaptive Arts and has just earned enough credits to receive CAA's equivalent of an Undergraduate diploma. She continues to participate in Angels on Stage and loves Zooming to read with Duncan & Patti McRae & Maddy in our DEMP Book Club. (Duncan, Emma, Maddy, Patti - get it?) We are on book 7 of the Harry Potter Series. (It's been a marathon, not a sprint!) We met the wonderful McRae family through our PWCF N. Cal support group many years ago when Duncan and Emma were just a few years old. It is wonderful to have a PWS community that understands the challenging journey we all share. For this we are grateful.
Emma is also a member of the Go-Getters special needs bowling league, takes a weekly singing lesson and works with a personal trainer. She also enjoys visits with her boyfriend, Max, who we also met years ago at the PWCF support group. It is a full life!
If you can walk with us, that would be great! This year's walk is on Saturday, May 4th in San Francisco at the Little Marina Green. Details are here: Northern California PWCF Walk
Our Prader-Willi California Foundation supports people with Prader-Willi syndrome (PWS) and their families.
Your donation helps to provide these ongoing services:
- Support of all newly diagnosed families in California
- Funding of PWS Multidisciplinary Medical Clinics
- Maintaining a 24-hour PWS Medical Crisis line
- Providing the only medically specialized camp in California that exclusively serves persons with PWS
- Producing educational articles, brochures, webinars, and a monthly eNews
- Providing advocacy and support services to families and care providers
- Educating and supporting teachers, physicians, and allied health professionals
- Weekly chats and activities on Zoom for people with PWS
- Support groups for parents and caregivers of people with PWS
- And so much more!
Donating via this web page is what's best, but if you prefer to donate by check, hereβs how
- Make out the check as follows:
Payable to: Prader-Willi California Foundation
For: Emma Fluhr-Resendes's Fundraiser - Mail the check to:
Prader-Willi California Foundation
Attention: Emma Fluhr-Resendes Fundraiser
1855 First Avenue, Suite 201
San Diego CA 92101
Thank you for your support!
- Emma, Maddy & Eddie