Emma Fluhr-Resendes

Emma Fluhr-Resendes's Fundraiser

Join me in being a Hero and supporting people with Prader-Willi Syndrome image

Join me in being a Hero and supporting people with Prader-Willi Syndrome

Help make a difference, please give today.

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$2,395 towards $2,000

Join me in supporting real change. Let’s support good in the world and make a difference. Help us create A Full Life Without Limits for people in California with Prader-Willi Syndrome.

Just a small donation will go a long way to helping us meet our goal for Prader-Willi California Foundation. Your gift is sincerely appreciated and will help support PWCF’s critical programs that improve the lives of individuals with Prader-Willi syndrome and their families throughout the State of California.

Emma has managed to thrive during these crazy and challenging times by making many fun and interesting Zoom connections. She takes classes with College of Adaptive Arts, plays Zoom Bingo and Zoom's Got Talent, did two Angels on Stage musicals (one entirely remotely!) and does a Zoom Book Club with Patti, Duncan and Maddy (we're on Book 5 of the Harry Potter series, which shows you how looong our pandemic lives have been going on!). We hike, we cook, Emma loves PWCF workouts with Brad Clark, and so on. She keeps herself busy. We are cautiously getting out more for family events and the like and take it all one day at a time. The small photo in the circle above is Emma atop Mission Peak after a strenuous hike up and up and up! Life is different, but in many ways we have become closer. PWCF has continued to offer absolutely invaluable support to us during this entire time. Having an organization that profoundly understands our lived experience with the ongoing challenges of this syndrome is amazing and we are grateful.

Donations received will help us:

  • Support all newly diagnosed families in California
  • Fund PWS Multidisciplinary Medical Clinics
  • Maintain a 24-hour PWS Medical Crisis line
  • Provide the only medically specialized camp in California that exclusively serve persons with PWS
  • Produce educational articles, brochures, webinars, and a quarterly newsletter
  • Provide advocacy and support services to families and care providers
  • Educate and support teachers, physicians and allied health professionals
  • And so much more!

Thank you for your support!