Please help raise funds for my Son RJ & his PW Friends

Join me in supporting real change. Let’s support good in the world and make a difference. Help us create a Full Life Without Limits for people in California with Prader-Willi Syndrome.

Thank you for visiting my fundraising page! I'm going to be 19 in 2 days can you believe it. Due to Covid-19, no walk this year, but you can still help me and walk virtually and help support my Prader Willi friends and I find a cure!

As most of you know it's been a rough journey for me. I was born with PWS & my Mom, Dad & doctors had no idea what was wrong with me until I was 8 months old when I finally got diagnosed with PWS. I didn't move, never drank out of a bottle, had to have a G-tube so they could feed me. I was in & out of the hospital for the first two years of my life, pneumonia three or four times, they didn't think I would make it, I was so scared. 😨 But being the tough Warrior that I am I was fine and I think I am stronger today for it all. I do not walk on my own or talk yet but we never lose hope and keep fighting to do it all! Although I've had four surgeries, the last one was the biggest, I had a Spinal Back fusion for my scoliosis, my back was curved like an S, it was pretty bad, now I sit up straight it's great. If I went to a general school I could have been considered a Senior last year & graduated, but since I'm at Hope School I'm happy to say I can attend there until I'm 22 so will graduate then!

Well that's about it for me, I really hope you can attend the Walk and donate, I want to make this year HUGE with all that's going on in the world today we can't lose site of a cure for ME!!! 😛

(PS, my Mom wrote this, she can hear my thoughts I think.)

Thank you,

Robert, Angela & RJ

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

Just a small donation will go a long way to helping me meet my goal for Prader-Willi California Foundation. Your gift is sincerely appreciated and will help support PWCF’s critical programs that improve the lives of individuals with Prader-Willi syndrome and their families throughout the State of California.

Donations received will help us:

• Support all newly diagnosed families in California
• Fund PWS Multidisciplinary Medical Clinics
• Maintain a 24-hour PWS Medical Crisis line
• Provide the only medically specialized camp in California that exclusively serves people with PWS
• Produce educational articles, brochures, webinars, and a quarterly newsletter
• Provide advocacy and support services to families and care providers
• Educate and support teachers, physicians and allied health professionals
• And so much more!