Emma Fluhr-Resendes

Emma Fluhr-Resendes's Fundraiser

Make a Difference for  Emma & Others with Prader-Willi Syndrome image

Make a Difference for Emma & Others with Prader-Willi Syndrome

Join me, please give today. Every amount helps our goal!

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$1,885 towards $2,000

Hi, it’s Emma!

This year is a Virtual Walk and we are going to pound the pavement in a new way!As I do every year, I am fundraising for Prader-Willi California Foundation. As you can imagine, this year PWCF needs our help more than ever. PWCF helps California individuals and families living with the many challenges of Prader-Willi Syndrome. They have helped me since I was born and I am grateful!!

Staying active is important for people with Prader-Willi Syndrome. Since the pandemic began my family goes for walks and has been staying fit by participating in the Santa Clara County “Magnificent 7” hike challenge at 7 different designated parks in the Santa Clara County Regional Park system.The hikes are fun (even when they are hard!) and the scenery is beautiful. 4 down 3 to go, plus a bonus 3 they just added! It helps our bodies and our spirits to be in nature. I am also going for bike rides with my dad, Eddie, on our tandem and joining dance parties on Zoom.These types of activities fit great with Prader-Willi California Foundation Community Week, which will be from July 27th to August 1, 2020.You can learn more about our Virtual Walk and PWCF at the Foundation’s website, www.pwcf.org.

For fans of the Big Bang Theory, please enjoy this video from Mayim Bialik whose PhD thesis was on Prader-Willi Syndrome!! She gets it!

Click here to watch Mayim Bialik’s video

Your donation in any amount will go a long way to helping us meet our goal for Prader-Willi California Foundation.Your gift is sincerely appreciated and will help support PWCF’s critical programs that improve the lives of individuals with Prader-Willi Syndrome and their families throughout the State of California.

Donations are tax deductible and will help Prader-Willi California Foundation. The tax ID number for PWCF is 95-3480752:

  • Support all newly diagnosed families in California
  • Fund PWS Multidisciplinary Medical Clinics
  • Maintain a 24-hour PWS Medical Crisis Line
  • Provide the only medically specialized camp in California that exclusively serve persons with PWS
  • Produce educational articles, brochures, webinars, and a quarterly newsletter
  • Provide advocacy and support services to families and care providers
  • Educate and support teachers, physicians and allied health professionals
  • And so much more!

Stay safe, healthy and strong!!